مبروك كسبت معنا جوال!

مبروك كسبت معنا جوال! هل نعطي المشاركين في البحوث مقابل مالي لمشاركتهم؟

من المعضلات التي تواجه الباحثين قلة المشاركين وضعف الاستجابة للاستبانات فيفكرون بطرق لقلبها وتشجيعهم ومن بينها حوافز مثل الدخول على سحب او كشف مجاني في عيادة، فما مدى أخلاقية هذه الممارسة؟

WELCOME TO GHAIATH.COM

“I am working on a legacy that goes beyond the numbers of visitors and subscribers”

Ghaiath Hussein

The aim of this ‘new’ channel of communication with you is to expand my reach to as many as possible to those who do not speak Arabic. I have dedicated www.ghaiath.net to be for the Arabic content and launching www.ghaiath.com to be my gate to English-speaking visitors.

I will try to maintain the focus to the areas where I can contribute some knowledge and expertise, namely public health, bioethics, and research. Sometimes, I may go a bit personal by sharing a piece beyond these domains. It’s my website after all 🙂

Feel free to comment, suggest, and criticize on the relevant page on this website.

Ghaiath Hussein is now a member of MSF – ERB

Ghaiath Hussein is now officially a member of the Ethics Review Board of Medicins Sans Frontiers.

The MSF-ERB is composed of a diverse group of professionals coming from different continents, with an understanding of humanitarian and NGO realities.

MSF ERB Website

It was a long journey. It started in North Darfur as a ‘field supervisor’ in the Crude Mortality Survey that the WHO conducted along with the Federal Ministry of Health and other stakeholders. This was in 2005. In 2006, I became the Survey Manager of the Sudan Household Health Survey in South Darfur. In both experiences, I got exposed firsthand to the planning and the conduct of research in humanitarian settings, especially during an armed conflict.

What did that teach me?

A lot. The hard way though. I once had one of my data collection team trapped (with their filled questionnaires) in a town that was attacked by the infamous Janjawid militias. It was a miracle to have them back safe and to have the questionnaires with extremely detailed responses untouched. The could have served as a ‘kill list’ should they have fallen in the wrong hands. These experiences led me to pursue my PhD at the exact same topic.

What’s next?

Not sure. Sometimes you share what you know because you feel obliged to and for the feeling that this is the right thing. It is not only the matter of how many people would benefit, or how many new subscriptions, likes, follows you get. A single person (student, colleague, or a website visitor) can make a huge difference with a simple thing you may have written or shared. Think of it like a seed. Until you throw it in the soil, you will never know for sure if it will grow and how big it will become as a tree.

Training with SAMA in Sudan

Sudan has this unique magic of keeping you pulled to it no matter how little or how hard you have lived in it.

I had the privilege to meet with brilliant minds who represent a very promising, well-committed, and a successful example of how Sudanese can help wherever they are. The Sudanese American Medical Association (SAMA) has kindly invited me to deliver a series of training activities in Sudan, well almost! The will be virtual sessions for the staff of two of SAMA’s collaborating centres in Sudan.

What does it include?

  • Ethics & Professionalism
  • Academic Writing and Scientific Publications
  • Communication skills for HCPs

On the hope that the electricity supply and the internet remain stable throughout the training sessions, these topics will be delivered one module per session, every Saturday morning (starting 9.00 Sudan’s time).

Who will be able to attend?

For now, the registration will be to the Turkish Teaching Hospital and Madani Center staff. However, there is a plan to broadcast the recorded lectures n YouTube.

Stay tuned to find more details.

Do we need bioethics?

Two counterarguments: Need and Employability

It may be surprisingly annoying to keep defining and defending your speciality every time you are asked about it. To many, including some medical colleagues, I have wasted my time and two dream opportunities: a master at the University of Toronto and a PhD at the University of Birmingham. Instead of ‘being a doctor’, they tell me in full empathy, I chose a ‘theoretical discipline’.

Although I had my masters in bioethics at the University of Toronto Joint Center for Bioethics more than a decade ago, my listeners still get confused when they ask me about my speciality and I quietly utter the word, “bioethics”. They respond, “good, biostatistics is not bad at all”. I try to correct them that bioethics has nothing to do with biostatistics. Some keep this sympathetic look of ‘oh dear, what a waste of time?!’. They believe, consciously or unconsciously, that I should have failed to be a clinician to go to this unknown field. Others openly argue, “why would you specialize in such unneeded, unemployable discipline”. 

This blog is for the latter.

First, Let me start by stating that I will not argue who a doctor is and what his roles are. Perhaps a look at the CanMEDS Framework can save me a lot of time of who is a doctor. Then, here we go.

Let me start by stating by two of my favourite quotes from two colleagues, Dr Wifaq of Sudan and Dr Adlan of Saudi Arabia, which are “people do not miss what they do not know” and “people do not know what they do not know”, respectively. 

One major gap in the development of bioethics in the region is that many people at various levels don’t miss bioethics because they don’t know what it is and how it can help them. This is true both at the clinical bedside decisions related to end-of-life care, informed consent, organ donation, their patients’ rights, telling their patients about their diagnoses, and the list goes on. Public health practitioners and the policy-makers who need to make ethical decisions related to who gets the vaccine first, how to allocate the resources during pandemics, and what are the limits we can impose on the people’s inherent rights to free movement and travel. 

All clinicians and public health practitioners face dilemmas they do not have an answer to, and they don’t know where to find it. Some refer to their faith and decide that a fatwa will resolve the issue, but even the mufti refers to other experts to be able to issue a fatwa. Moreover, this technically means we need a mufti for every hospital because the cases may seem similar but not identical. 

Some prefer to play it safe and follow the rules, policies and guidelines. Unfortunately, these documents are mostly written by and for clinicians for clinical purposes. They seldom provide meaningful ethical guidance. Others prefer to take it on their own and decide by ‘what pleases their conscious’. This is even trickier as it varies widely, depending on what you think the right thing is.

Bioethics is a systematic study of these issues in all the disciplines and fields of healthcare that aims at helping the decision-makers through theoretically-justifiable decisions that can be applied through practical frameworks and tools. Many people do not know that. Hence, they will not miss it. Back to the quotes, I started with.

In that sense, the need argument is void because of the perception of the need to absent. 

The picture is not that dark after all.

To be fair, there is a growing awareness of the field. This is very true during the pandemic. For example, the UNESCO has asked some experts in bioethics to record some video messages for the public about the ethical issues related to COVID-19. Also, the Saudi National Bioethics Committee and the Saudi Health Council have formed expert panels to develop ethical guidelines for the conduct of research and the allocation of scarce resources during the pandemic, respectively.

These initiatives give a tint of hope that the need is growing and the field is progressing, and perhaps more people are becoming interested in it. However, there is a need to move from the era of ‘bioethics by interest’, to bioethics as a discipline. Many people, back to the quotes, think they know bioethics because they have read a few books, and subscribed to a few bioethics journals. They were, then, invited as speakers or teachers of bioethics for undergraduate students and the public. Sorry, this does not make them experts. They just do not know that they do not know. 

As an academic discipline, bioethics should be treated as one. There is no physician, or lawyer, or social worker by interest. Yes, there is no certification for bioethics, yet. But this does not mean anyone should call himself a bioethicist, at least as long as there are postgraduate academic programs that people spend years studying. I need not disclose how biased this sentence is, given that I have spent many years in formal education of the field.